PATIENTS AND SOCIETY AT THE CENTER OF DECISIONS
The current care model in the health sector, based on the diseases of individuals, or disease-centricity, where health players only act when the patient has a specific diagnosis, leaves the user lost in the rest of their journey as a patient.
Fortunately, we are increasingly seeing a paradigm shift in the health sector, moving from this disease-based model to something more patient-centric, called patient-centricity.
In this sense, Colabore creates surveys, focus groups, creates coalitions of NGOs and studies the journeys of patients with different diseases to understand the challenges at all stages of their trajectory (from the first symptoms, pre-diagnosis, diagnosis, treatment to follow-up with the doctor) to understand the real needs and work on public policies based on these findings. In this way, we put the patient and their families at the center of decisions to generate value for health from their perspectives.
In parallel, we collaborate with government agencies and companies to create processes that increasingly consider the needs and reality of patients, generating value to health from their perspectives.
Below are some examples of how we do this in practice.
ngo'S
COALITION
We brought together 5 NGOs dealing with cardiovascular diseases or related topics and created GAC (Cardiovascular Advocacy Group). The objective is to understand with these patient representatives the main existing challenges, create public policy strategies and work together for changes. Since its creation in 2017, GAC has carried out several actions that have increased awareness and prevention of these diseases, as well as quality of life and care for patients.
PARTICIPA+
brasil
Colabore was invited to participate in discussions with the board of the platform Participate + Brazil to share society's challenges in relation to the platform and jointly think about ways to expand social participation in Brazil.
SURVEY WITH
PATIENTS
We surveyed hundreds of sickle cell patients to understand their challenges and needs. The Treatment Protocol and Therapeutic Guidelines (PCDT) of the disease will be updated soon, and we will bring the patient needs reported in this survey to those responsible for this update. Our goal is to ensure that the document actually meets the needs of people living with the disease.